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Post by Lyme Challenged on Oct 13, 2015 20:12:48 GMT -5
Shared from John Caudwell's Facebook page. www.facebook.com/johndcaudwell?fref=ts"Upto yet I am happy about the exposure we are getting on Lyme. It does seem to be capturing the media attention! My interview on sky news yesterday was another step in the right direction. However we are a long long way off from where we need to be and media pressure must not only be kept up but must be stepped up. First the health service need to recognise the potential scale and severity!They need to take ownership!! They need to change the testing laboratory to a much more reliable one. (Our UK lab is said to have many false negatives).Then doctors need training for the symptoms and much more challenging, training on how to treat!To start this process we will design a Lyme diagnostic 'Tick' sheet that will only take a few mins to fill in. I so wish we could do more and much faster for the 10s of thousands of you out there who know you have Lyme and can get no appropriate help and for the potentially 100s of thousands misdiagnosed! Regarding my Lyme:- After 3 days treatment I felt very ill burning brain, terrible short term memory, aching body. I am presuming Herxeimers reaction.My eldest daughter suffered similarly and my son had a another heart event and psychotic episode My younger daughter had to suspend the treatment altogether. So not a good weekend but I am confident this is just a blip on the road to recovery."
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