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Post by Lyme Challenged on Dec 20, 2015 12:38:28 GMT -5
Floor Debate on Lyme Disease Rep. Frank Wolf
Chronic Lyme has been around for a long time now and for a long time now it has been boxed up and denied as a real disease.. The people who control everything are the ones that have the patents on Lyme disease and have personal reasons why they ignore good science proving that Chronic Lyme does exist..
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Post by Conny Johnson on Dec 21, 2015 16:59:33 GMT -5
I was dx with Lyme Disease 5 years ago. That rep. arguing about a majority of doctors dont believe in chronic Lyme disease, the reason is because they get the answer from the CDC, who is in bed and covering up the newer and better science. John Coughlin on his FB page is posting, starting today 12,/21 /15 lists of case studies and clinical trials. One page a day for a WHOLE MONTH. The first page had about 10. I still have not been able to afford the IV ABX treatment because I can't afford it. My whole family was tested after my dx. 3 of us 5 are sick to the point of disability, all of us were misdiagnosed for years. The other 2 have light symptoms which was why I asked them to get tested also. They tested positive for Lyme. We were all together in summers at one of their homes so obviously a cluster of infection. Every one of us went to different places since we now live all over the country, so not positive because of a single doctor. They still don't treat us as if we have chronic Lyme. There is NO WAY we healed ourselves before dx so obviouslly we have it chronically. 1 of 5 of us originally dx,and it took 35ish years and getting crippled by a misdiagnosis that caused more damage than the Lyme was already causing. We spent all our money trying to get help before dx, and after the crippling of me that I can not get treatment! I would love to come up and tell my story of the heck the doctors that claim that there is no chronic lyme forget if NEVER treated then, yes there is! It is more dangerous having so many doctors that read a paragraph from the CDC and dismiss us. Also I could probably have a doctorate if I recieved credit for all the research I have done on all matters Lyme. I figured out the Lyme myself and THEN insisted on the more accurate test, western blot. I had to find my own diagnosis because doctors don't know enough to dx it, much less debate those of us with Lyme. Now I am 52 crippled since 2 weeks after my 40th b-day. I guess you want to wait till we die from this before you do anything to help. Please take Lyme Disease out of the purview of IDSA (a for profit company) and put this decision in the hands of one of our foundations actually doing real work collecting the science hidden by the IDSA that supports chronic Lyme.
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Post by Lyme Challenged on Dec 22, 2015 6:26:31 GMT -5
So sad Conny we have all been abandoned by main stream medicine, it's a crime that will go down in history one day as the biggest debacle in medicine..
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