Post by Lyme Challenged on Oct 27, 2015 7:48:57 GMT -5
John Caudwell
26 mins ·
#Lyme
First of all thank you so much for the concern shown to myself and to my family. As I have said before, you are all very united and compassionate in your suffering. I am determined to gain proper recognition for Lyme disease within the UK and hope that will then role out to the rest of the world. Since starting my campaign 4 weeks ago I have done over 20 interviews for radio, press and TV and met with some of the world's top Lyme experts.
As a result of this we seem to be gathering a real momentum within the media and I have left that momentum to gather whilst lobbying the Government, and starting the recruitment of a Chief Executive and a researcher to join me. Very shortly I will be doing another round of interviews to talk about where my family are now with this insidious disease and the fact that 5 tested 5 positive became 9 tested 9 positive.
Many of you have offered help and I very much appreciate that but it is very difficult to keep track of especially because my memory is still Lyme fogged. Some of your offers for help have been extremely impressive and come through on Facebook, Messenger, Twitter and Email.The best way of making sure that your interest to help is registered is buy sending a similar message to: lyme@caudwell.com The next bit of what I want you to do I am going to put in a separate Facebook message so that it is not lost in this post. It is a request for any of you that can to do a specific piece of work for me to help with my lobbying. Given that I am in Orlando, I am now off to Animal Kingdom - I'll be in touch later!
Thank you all,
John Caudwell